HUNTINGTONS Clinical Trial Song SUPER FANTASTIC
I was on the clinical trial for ACR-16, now HART-open label Pridopidine
now every cognitive test on the meds has seen improvement,
before i was on this i ccould only do the HD finger test 2 time n stick , now go along timeI use to constantly twitch n my hands face feet, and my driving was being affected, cause wiggled more and i could not put med in containers to take would drop em weekly bite cheeks tongue at least 2 time a mo, was chocking on food more anger frustration apathy wores this med and how i pray r making a difference, when they took me off the meds for almost a yr i thinki noticed twithching frustration dropping balance drivin apathy all worse
here a copy of the email i sent when the took me off the meds
From:
Robert W. Simpson
3616 99th Drive SE
Everett, WA 98205
425-335-3332
[email protected]
RE: HART ACR16 Clinical Trial, Huntexil in Europe i think
by the way this typing is extremly difficult now
I did my Clinical Trial here
Cherrie Sia and the Dr’s and staff at the Booth Gardener Parkinson’s Center
I wrote this a a song;
What a SUPER FANTASTIC
Huge monster difference
Thank you for letting me
give it a try
There are soo many ways
that this medicine helps me
Doctors who prescribe this
will really change lives
some of the ways your medicine helped me
with mood swings and driving
movement, thinking and sleeping
thank you for helping so many lives
It helped me with twitching, shopping and fishing
also with speaking, focusing and balance
I got ready for church with
less work or time
I was alot less forgetful and I could stay on task better
I was in a good mood/less screaming and yelling
Less making my lists, now where did I put it?
I had NO!!! Side Effects
NO! not even one
I Smiled More and felt Happy and Hopeful
also took naps and my Blood Pressures Better
I know it is not a cure, but it makes a Huge Difference
I Pray it gets FDA approval soon
so it can help and bless many other lives
Thank You
Robert Simpson
I had soo much daily stress in my life, i did not notice how well i was doing
untill they took me off the medicine, forgive me for missing it.
My father in law was sick, and dieing most of that time
lots of Dr apt’s for him, then recovery center, then died at home.
After I stopped the medicine I have noticed
Thu 7/ /2010
foggy more confusion harder to speak
what i think, forgot to ask for friends help,
with youth bake sale and car wash, for church youth
now less money earned
Fri 7/ /2010
got up at my early time to go try fishing, 4:30 am
things seem less important
less enjoyable, apathy
later, more clumsy
harder to try to shop,
harder to scoop ice cream ,it is on floor
miss feeling better
Frustrated
Bible study is harder
it is too hat in livbing room no fan
1am, try to fall asleep
wife and son not home from yet from grieving mother in laws
do i leave porch light on for cheryl, she gets mad if i donot
but it keeps mee awake
confused
Sat Mornig 6am
How can I be a spokesperson for your medicine?
It helps in so many ways, I was so stressed
I didn’t notice how Great it is sooner
It helps with:
Concentration, Coordination
Thinking Reasoning
Mood
Sleep
Twithcing, Grimiicing
movement
walking
Driving
Fishing, caught 80 trout, 200 perch, 5 bass, 5 catfish, 5 carp
I was working on a way to get my 30+ Christian songs recorded, before I forget them
Apathy I cared more about things
instead of thinking about possibly doing stuff, I was tryin things
Thank you for a fantastic medicine! that was making my life better daily
Writing
Computer use
Smiling
Hopeful
Happy
Blessed
Praying
speach better
life is more fun
Sat mornin going fishing, they are talking about killing all the fish in this lake they consider bass perch catfish carp invasive species, and many only likr trout so they want to take the oxygen out of it and kill it, I eat all the fish i catch and share them with disabled friends
I was trin to figur out how too stop them, I helped some families catch there 1st fish here, buy loaning thier kids my fishing poles they caught trought perch and bass, all with a worm. I taught him how to clean them,we caght 10 perch he filleted most of them
so I hnow how it is nice caring again
I pray I do not go to far back wards and stop caring = Apathy
clinical trial for HART ACR 16 It works wonderfully for me
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